In Loving Memory of Willow Nevaeh

Geelong mum, mental health and child loss awareness advocate and influencer Amie Rohan has experienced the heartbreak that comes with losing a child.

Willow’s Story

When Amie found out she was pregnant, she was overjoyed, knowing that she would soon become a mother.

In April 2018, Amie gave birth to her twin daughters, Bella Rae and Willow Nevaeh.

Willow was born with a rare neural tube defect called anencephaly, a condition where part of the brain and skull are underdeveloped, and babies have little chance of survival beyond the first few days of life.

Only 5 hours after giving birth, Amie had to say goodbye to her much-loved daughter Willow.

Sharing Her Story with Red Nose

As a Red Nose Bereavement Ambassador, Amie has openly shared her journey of losing her daughter Willow and hopes that through sharing her story it can help reach others experiencing a similar loss.

“There’s so much healing that comes from sharing.

Only a few years ago, I would have struggled to put into words what I was feeling after losing Willow.

Red Nose has given me the strength to be able to share my story and, in turn help other families experiencing the grief that comes with losing a child.”

Amie Today

Now a mother of Bella Rae, Sadie Rose and Archie, Amie is passionate about helping to raise awareness of pregnancy and child loss and continues to support Red Nose through fundraising.

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Last updated on August 20, 2026
Published on September 9, 2022

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“I found meeting people in real life who were going through a similar journey helped me greatly. It was so healing to be able to support one another, listen to and share our experiences without judgement or anyone feeling uncomfortable. Without a doubt the peer support I received through Red Nose immensely helped me mentally and emotionally during the times that I needed it the most”

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